In plain English
Your GP practice is the foundation of NHS care for people with dementia. The practice manages ongoing care, prescribes most dementia medication after specialist initiation, and co-ordinates with social care and hospital services.
What the GP does
The GP practice provides:
- Initial cognitive screening when memory concerns are raised;
- Referral to the memory clinic;
- Ongoing prescribing of anti-dementia medication under shared care;
- Management of comorbidities (blood pressure, diabetes, cholesterol);
- Annual dementia review (NICE NG97 1.2.10);
- Acute illness, including suspected Delirium;
- End-of-life care planning and provision;
- Sick certification and benefits supporting evidence;
- Co-ordination with social care, hospital and specialist services.
The annual dementia review
People diagnosed with dementia are on the GP's dementia register and should receive an annual review covering:
- Cognitive symptoms and any change since last review;
- Behavioural and psychological symptoms;
- Medication review (including anti-dementia medication and other medicines);
- Physical health: blood pressure, vascular risk;
- Mood and sleep;
- Carer wellbeing;
- Social and practical support;
- Advance care planning where appropriate.
Annual review may be a single appointment or a series. It may be conducted by the GP, a nurse practitioner, a community psychiatric nurse or a clinical pharmacist depending on local arrangements.
Shared care prescribing
Anti-dementia medication (Cholinesterase Inhibitors, Memantine) is typically initiated by the memory clinic and continued by the GP under shared care. The arrangement specifies:
- Who is responsible for monitoring;
- When to review;
- When to refer back to the specialist.
If you are seen privately and the private clinician recommends medication, your NHS GP can usually continue prescribing under shared care after seeing the structured letter. The Dementia Service provides a structured letter aligned to ICD-11 to support this.
Making the most of GP appointments
Before
- Write down concerns and questions, in order of priority;
- Bring a brief carer summary if helpful;
- Bring the medication list;
- Bring recent letters from specialists.
During
- Address the most important concern first;
- Ask for explanation of any unfamiliar terms;
- Confirm next steps before leaving (what will happen, when, who will do what);
- Ask for written information where useful.
After
- Confirm any referrals or tests have been actioned;
- Note when to follow up;
- Use the practice patient portal if available.
Telephone and online appointments
Many GP practices offer telephone, video and online consultations. For people with dementia, face-to-face is often easier; for carers, remote consultation can be useful for ongoing queries.
If the GP service is not working for you
Where you are not satisfied:
- Speak to the practice manager;
- Request a different GP within the practice;
- Use the practice's complaints procedure;
- Contact NHS England (or equivalent) if complaints are not resolved;
- Register with a different practice (most areas allow patient choice).
If your GP is reluctant to prescribe shared care
Where the GP is uncomfortable continuing private specialist recommendations, options include:
- Ensuring the private specialist letter is fully aligned with NICE guidance;
- Requesting NHS specialist referral for ongoing care under the NHS;
- Continuing private prescribing (more expensive but possible);
- A structured conversation with the GP about the shared-care arrangement.
Most GPs are willing to prescribe under shared care where the specialist is appropriately qualified and the letter aligns with NICE.
Frequently asked questions
How often will my parent see the GP?
Annual dementia review at minimum, plus ad-hoc appointments for medication review, acute illness or new concerns. Some people see the GP several times a year; others rarely.
Can I attend appointments with my parent?
Yes, where the person consents (or where they lack capacity and it is in their best interests). Carers provide valuable history and continuity.
Can I speak to the GP without my parent present?
Confidentiality applies. The GP can listen to your concerns and take them into account, but information sharing about the person requires their consent or a best-interests decision.
What if my parent does not want to see the GP?
Try to address the concerns leading to reluctance (transport, embarrassment, fear). Home visits, telephone consultations and bringing a familiar person may help.
Does the GP refer to specialists?
Yes. Referrals to memory clinic, neurology, geriatrics, palliative care and social services come through the GP in most cases. Self-referral is possible to some specialist services in some regions.
References
- NICE NG97 recommendation 1.2.10 (annual review).
- Royal College of General Practitioners. Dementia in primary care.
- NHS England primary care contract.
- NHS Constitution for England.