Find local and national dementia support groups that can help you as the carer or if you suffer from the disease yourself. Find telephone numbers, websites and contact details of organisations that specialize in dementia care and support.
They can help you with more information on the different kinds of dementia and help find local groups and organisations suited to the type of dementia you may need more information about.
If you are based in the UK and run or are involved with any support groups or a dementia care organisation that helps carers or families of people with dementia and would like to be listed then please contact us for a free listing.
Dementia support groups are in alphabetical order
Action on Elder Abuse
Action on Elder Abuse (AEA) works to protect, and prevent the abuse of, vulnerable older adults
Telephone – 0808 808 8141
Age UK (formerly Age Concern and Help the Aged)
Age UK is the one of the UK’s leading charities for the elderly. They provide life-enhancing services and vital support to many people with dementia. Age UK also have many dementia support group meetings throughout the UK and a group can be found in almost every county
To contact AgeUK
Telephone – 0800 169 6565
Alzheimer’s & Dementia Support Services (ADSS)
ADSS provide services in the Dartford, Gravesham & Swanley, which have been developed to encourage choice in a dignified, supportive and friendly atmosphere. Based In Kent.
To contact ADSS
Email – firstname.lastname@example.org
Telephone – 01474 533990
Alzheimer’s Disease International (Alz)
ADI is the international federation of Alzheimer associations in the UK and around the world. They are based in London.
To contact Alzheimer’s Disease International
Email – email@example.com
Telephone – 020 79810880
Alzheimer’s Scotland run a 24 hour, free phone Dementia Help-line for people with dementia, carers and family members, or anyone with any questions or concerns regarding dementia.
To contact Alzheimer’s Scotland
Email – firstname.lastname@example.org
Telephone – 0808 808 3000
The Alzheimer’s Society are leading UK care and research charity for people with Alzheimer’s and other types of dementia, their families and carer workers. They organise and provide many dementia support groups throughout the UK.
To contact the Alzheimer’s Society
Telephone – 020 7423 3500
Alzheimer’s Research UK
Alzheimer’s Research Uk specialise in funding world-class, pioneering research at leading universities to find preventions, treatments and cures for dementias.
To contact Alzheimer’s Research
Telephone – 01223 843899
Art 4 Dementia
Arts 4 Dementia Ltd is a new charity helping to develop and co-ordinate high quality inter-generational arts opportunities for people living with dementia in the community. Stimulating brain activity and bringing inspirational relief from anxiety and confusion, for them, their families and carers. We have more information and a short video here
To contact Arts4dementia
Telephone – 020 8780 5217
Provides Information and advice on assistive technologies for people with dementia. A UK-based charity funded with help from the department of health. Also provides information on dementia consultancy and education for all dementia support groups and individuals.
Carers Trust is a new charity which was formed by the merger of The Princess Royal Trust for Carers and Crossroads Care in April 2012.
To contact carers.org
Telephone – 0844 800 4361
These are a brilliant campaign group for carers across the UK that is run by independent unpaid carers.
Check them out and help if you can.
Carers UK provides advice and information to carers and professionals who support carers. They provide information and advice to carers about their rights. How to get support and how to complain effectively and challenge decisions.
To contact Carers UK
Telephone – 0808 808 7777 (Weds and Thurs 10am – 12pm and 2pm – 4pm),
Contented Dementia Trust
The Contented Dementia Trust helps those who have already been diagnosed with some form of dementia and their carers. For whom practical help and resources are more important than research into prevention and cure.
To contact the Contented Dementia Trust
Email – email@example.com
Website – www.contenteddementiatrust.org/
Dementia Action Alliance
Dementia Action Alliance is made up of over 900 organisations and dementia support groups. They are committed to transforming the quality of life of people living with dementia in the UK and the millions of people who care for them.
Dementia Club UK
Dementia Club UK was started by Cllr. Lisa Rutter when she was the Mayor of the London Borough of Barnet from 2011/2012. Lisa is now running 3 Dementia Clubs around the Borough of Barnet and will be launching a 4th Dementia Club also supported by Saracens Foundation. All sessions are run by Councillor Lisa Rutter, supported by Saracens.
Dementia Dog is an organisation based in Scotland at the Guide Dogs For the Blind training facility in Forfar, Angus. Its aim is to help people with dementia through trained dogs to help dementia sufferers in their everyday daily life.
To contact Dementia Dog
Dementia Friends has been set up to help people gain a better understanding of the disease and then turn that knowledge into action. The aim is to create over 1 million dementia friends a across the UK and is open to anybody of any age and all dementia supprt groups, individuals and businesses are encouraged to get involved.
Dementia Research Centre
A London-based clinical research centre carrying out new drug tests into Alzheimer’s disease. Based at the National Hospital for Neurology and Neurosurgery (NHNN)
Dementia talk is an online toolkit for people living with and caring for people with dementia. It offers free advise and information for ways in which you can make better communication. Great help for all dementia groups.
Dementia UK is a national charity committed to improving quality of life for all people affected by dementia. Their affiliate uniting carers is a national network of carers, former carers, family and friends of people affected by dementia. Great support for any dementia groups.
To contact Dementia UK
Telephone – 020 7874 7200
Frontotemporal Dementia Support Group
The Frontotemporal Dementia Support Group is particularly directed towards carers who are coping with behavioural changes in a partner, family member or friend as a result of frontotemporal dementia.
To contact the Frontotemporal Dementia Support Group
Telephone full list of regional telephone contacts here
Lewy Body Society
The Lewy Body Society is a registered charity based in the UK. There purpose is to fund research into Dementia with Lewy Bodies (DLB). They also provide a community focus for people who suffer from DLB along with their carers and families.
To contact the Lewy Body Society.
Telephone – 0131 473 2385
National Dementia Carers Day
National Dementia Carers’ Day is a UK wide awareness day, falling within World Alzheimer’s Month. National Dementia Carers’ Day 2016 will take place on Sunday 11th September 2016.
Telephone – 0845 257 9406
Nice (National Institute for Clinical Excellence)
NICE guidance support healthcare professionals and others to make sure that the care they provide is of the best possible quality and offers the best value for money.
To contact Nice (National Institute for Clinical Excellence)
Telephone – 0845 003 7780
Parkinson’s charity based in the UK. Helpful advice on the two forms of dementia associated with Parkinson’s disease, Parkinson’s Dementia & Dementia with Lewy Bodies.
Telephone – 0808 800 0303
Young Dementia UK
Originally known as The Clive Project, Young Dementia Uk is a charity set up to help younger people with dementia.
To contact Young Dementia Uk
Email – firstname.lastname@example.org
Telephone – 01993 776295
Website – www.youngdementiauk.org
Other helpful dementia support groups
There are many more small and large dementia support groups situated all over the UK and we would love to hear from you.
If you are looking for a support group in your local area we can help. Simply send us your postcode or local town or city via our contact form and we will do our best to find local dementia support groups for you. Please include any relevant information and we will put you in touch with support groups that can be a great help and support to you.